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Your Data Could Save Lives - Full Animation
PIONEER is improving patient care by making routinely collected health data available to doctors, researchers and academics. This is done under licence, so that the data can be used ethically and with robust governance. The aim is to improve treatment choices as well as identifying new ways to deliver clinical care.
PIONEER has been given ethical approval to make use of legally available health data, as the research programme has the potential for considerable public benefit. The PIONEER Hub has chosen to use unconsented data as this is most reflective of our whole society, which is important to ensure research is relevant and findings are widely applicable.
If you are a patient who has received acute care from a PIONEER data partner, your de-identified health data could have been used in our research. Your anonymised data may have helped improve health care for everyone. -
Your Data Could Save Lives
PIONEER is improving patient care by making routinely collected health data available to doctors, researchers and academics. This is done under licence, so that the data can be used ethically and with robust governance. The aim is to improve treatment choices as well as identifying new ways to deliver clinical care.
PIONEER has been given ethical approval to make use of legally available health data, as the research programme has the potential for considerable public benefit. The PIONEER Hub has chosen to use unconsented data as this is most reflective of our whole society, which is important to ensure research is relevant and findings are widely applicable.
If you are a patient who has received acute care from a PIONEER data partner, your de-identified health data could have been used in our research. Your anonymised data may have helped improve health care for everyone. -
Health data and health data inequalities
Find out how routinely collected health data can help address some but not all health inequalities
Explore topics including:
What are the limitations of research studies in understanding the burden of disease?
How can routinely collected health data correct for this?
What is “health inequality” in terms of routinely health data?
Why is this important?
How can we improve health data inequality? -
How has Covid 19 changed the health data research landscape
The year 2020 seems to have changed everything. How has health data research been affected?
Explore topics including:
What was it like in frontline NHS services during the first wave of COVID?
How was health data shared to improve knowledge of this new illness?
How did health data help plan the clinical response?
What did we learn about the impact of the first wave of COVID? -
Using health data responsibly
How do we ensure health data use is in the publics best interests and that it is used safely and securely?
Explore topics including:
Understanding public comfort zones
Responsible data access decisions
How data is accessed in a secure environment?
Anonymisation Vs pseudonymisation -
Transforming care by building electronic health records
Find out more about how electronic health systems can improve patient care
Explore topics including:
How was the electronic health record at University Hospitals Birmingham designed and built?
What sort of data is stored?
How is that data used by the healthcare team to improve care in real time? -
How is health data controlled and governed
Find out more about the rules in place to keep your data safe
Explore topics including:
What is “information governance”?
What is a Caldicott guardian?
What is GDPR?
How are decisions made about data use?
What are the “5 safes”? -
Introduction to Health Data
Find out more about health data and how it is used in research.
Explore topics including:
What’s the difference between data and information?
How is data changing our world?
What does big data mean?
What are the opportunities using big data?
What are the challenges and risks? -
Our Story
PIONEER is improving patient care by making routinely collected health data available to doctors, researchers and academics, under licence, so that the data can be used ethically and with robust governance to improve treatment choices as well as identifying new ways to deliver clinical care.
