Your Data Could Save Lives
Using your routinely collected health data for research is helping others by improving patient experiences and outcomes.
How does PIONEER use your health data?
PIONEER is improving patient care by making routinely collected health data available to doctors, researchers and academics. This is done under licence, so that the data can be used ethically and with robust governance. The aim is to improve treatment choices as well as identifying new ways to deliver clinical care.
PIONEER has been given ethical approval to make use of legally available health data, as the research programme has the potential for considerable public benefit. The PIONEER Hub has chosen to use unconsented data as this is most reflective of our whole society, which is important to ensure research is relevant and findings are widely applicable.
If you are a patient who has received acute care from a PIONEER data partner, your de-identified health data could have been used in our research. Your anonymised data may have helped improve health care for everyone.
If you want your data to be used to help answer critical health research questions, or plan better services for you, your family and others, then you do not need to do anything. Your data is automatically used for these purposes.
However, you can choose to stop your patient information being used for research and planning. The option to opt out applies to anyone over the age of 13 who lives in England. If you live elsewhere in the UK, your data may be handled differently. Further information is available at www.nhs.uk/your-nhs-data-matters
If you wish to opt out of your data being used by the PIONEER programme specifically, please contact us.
Read more about the kind of health data that is routinely collected, the different purposes it is used for and how it is used responsibly to ensure your privacy is protected.
Take a look at the projects we are supporting and find out more about the range of research made possible by sharing health data.
Please find key information in different languages below. We also have a large font version available to download and print.
Your data could save lives leaflet (English)
منشور “قد تكون بياناتك سببًا في إنقاذ حياة الأخرين” (Arabic)
Twoje dane mogą uratować życie (Polish)
Buug-yaraha xogtaada caafimaad ayaa badbaadin kartaa nolosha (Somali)
آپ کا ڈیٹا زندگیاں بچا سکتا ہے لیف لیٹ (Urdu)
Your data could save lives leaflet (Large Print)
Your data could save lives poster (English)